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Old Mon Mar 25, 2013, 02:49 PM
sasba sasba is offline
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Join Date: Mar 2013
Location: Ireland
Posts: 3
Mum to son with AA

Hiya all,
My son is 11 and in July 2012 was diagnosed with AA, he was receiving transfusions every week (mostly platlets) and had the ATG in the middle of Oct 2012. still was getting transfusions up until the 14th December and hasn't had any since. after xmas the platlets were going up and then he was taken of his intraconazole and it seemed to interfere with his ciclosporain levels and they had increased it every week from the 11th feb, he is now on 90mg twice a day. im confused as to how long it can take for the platlets to regulate, his other counts have gone up the platlets just seem to be very very slow. in one breath the doc saying the posabilty of a BMT and the other they are sending him back to school. From many stories I have read that it takes a lot of people 9 months after ATG for the bloods to regulate. My son is in great form and eating well the whole way through everything. Please don't reply with any horror stories as im a single mum who suffers from anixity and also trying to support my son through this and his autism/learning disabilities. Im just looking some kind of advise or someone to chat to as I feel very isolated as I don't know anyone else who has or children have AA. im glad I found this site.
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