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started vVdaza - stabel after first cycle
Hi Kirby
I wish you well with the vidaza and hope your success with treatments continues. I use you as a guide and inspiration for David. He stopped the revlimid by mutual agreement with his trial doctors. He had a 5 mth remission and then on the normal dose he seemed to be worse with a drama almost every month. He feels better " in the head" now but is very weak a nd lethargic. I tell him it is probably just the disease or his iron overload ( now 109 Txs). He is being very conscientious with his chelating ( cannot take tablet form) but the ferritin is being fairly stable. His doctors do not seem to have any other explanation other than his liver being under a strain with the mds.
Again be well and happy
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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