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Old Tue Jun 28, 2016, 03:39 PM
KatailS KatailS is offline
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Join Date: Apr 2016
Location: Avon, CT
Posts: 41
Thank you, bailie

Thanks for your reply.
I agree. The most interesting part of all this is that I was in the best health of my life when the numbers suddenly went down. I was going to the gym frequently, eating healthy, lost 40 lbs, ran in a 5k obstacle race, was playing fairly decent golf (driving the ball a ton and walking 18)....

I am taking the doctors orders seriously and continuing to live my life. But I am concerned and I want to do everything I can to live a long and healthy life. It is scary that I did everything the doctor asked me to do and my marrow got worse. I expected it to be the same, if not better.

Regarding genetic mutations.... I could not find anything in the reports that said otherwise so I am guessing there are none.
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Kathie - 54 yr old mother of 4, pancytopenia since 11/2014, moderate AA 8/2016, small PNH clone (now increasing), monitor bloodwork every three months
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