[Ulla]

Hi
I have heard different things about what is available in treatment of MDS. There are two issues: One, what is available and two, what is being paid for. I was told that Vidaza and Dacogen are not approved here. Could they still be used in clinical trials, or would I have to go to the U.S. for that? My doctor told me that Revlimid was only approved for 5q syndrome, but I know there have been trials for RARS without the 5q, with somewhat lower responses, but still effective. The erythropoetin drugs such as Aranesp can be prescribed here, if you can pay for them. Can they be covered if your doctor applies?
Another question: Where can I get the names of hematologists who are specializing in MDS and MPD in Ontario?
DX MPD June 2007, RARS June 2008, possibly MDS/MPD.