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Hi Ulla
Where about's in Ontario are you from? My mother was diagnosed with RARS in May. Her doctor is Dr. Irwin Walker from Mcmaster. I was just wondering if you had the same hematologist or not.
I totally understand what you are saying about not being covered/drugs not being available here. It is very frustrating. Especially when you read on this forum about all the wonders that these drugs are doing for people.
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