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Some news and insight from all of you
So my dad was unable to be matched on the international registry and will be moving forward with a cord blood transplant. Dr. M says its because we are a minority (Italian) and finding a match is near impossible. We have contacted relatives in Italy and family to bethematch.org in hopes that SOMEONE can be a match. I am extremely disappointed and tired of receiving bad news after bad news. For the people that have had this type of transplant, How are you doing now and what was your treatment protocol? Total body radiation or different chemo? Did you eventually find a donor?
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Daughter of father diagnosed with MDS RAEB-II intermediate risk due to normal cytogenetics. Blasts at 13% peripheral blood at diagnosis with no cytopenias. 6 cycles on Vidaza then on to SCT at Duke. BMT from my brother and now showing signs of relapse. DLI in the works.
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