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Old Wed Aug 28, 2013, 05:26 AM
Honeybun Honeybun is offline
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Join Date: Aug 2013
Location: Perth Western Australia
Posts: 90
Thank you Greg

I probably wrote it wrong I admit, not up with all the codes just yet . I know I have del 5 q deletion of the the long arm of the 5th chromosone with a translocation of the 7th chromosone. So I hope that is clearer now.

The consultant will recommend me for lenolidomide, but at this stage it is not available on the PBS in Australia and will cost over $5000 a month if I want to pay for it. The consultant thinks it may be available in December, but I will still need to qualify. So no guarantees yet. Just have to wait and see.

Honey
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Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
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