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Hi Sunny! I am sorry you have to deal with these challenges. For me, I have a slew of other medical issues, some rare,some still undiagnosed even after 8 years; some quite serious (lung cancer x 2 for example). But I am still doing well enough to go to NYC for a 5 day holiday! My heme/onc says I'm the healthiest train wreck she cares for. What works for me is to not focus on any illnesses/side effects/ blah, blah, blah. I do not want to become my disease; I try to act as if I have nothing wrong with me, and live each day very grateful to still be hanging around. Carpe diem baby! Sometimes it's easier than other times, but I just focus on the positives and leave the rest for God.
Mags
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Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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