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You shouldn't have to fight your doctor. In my experience, doctors sometimes act the way you describe when they are in over their head. You are lucky to live in a place with access to world class bone marrow specialists.
City of Hope and UCLA are both great hospitals and they are experienced at dealing with complicated cases and coordinating with other medical providers. We were originally scheduled to go to City of Hope but ended up seeing Dr. Paquette at UCLA. Both places have very user-friendly intake systems, which is often the most frustrating part of being a new patient, especially when you're worn out.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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