Update from David
Unfortunately my stem cell transplant has started to fail and the leukaemia has returned already.
I have been back in hospital for a week and half now. They have started me on azacytidine and venetoclax to try to buy some time, but the prognosis is not good.
I don't feel unwell, but they won't let me go home because I am running a constant temperature.
So my world has been turned upside down again. The pure joy of a seemingly successful transplant has suddenly changed to despair. What a cruel disease.
David, Age 60, diagnosed with MDS August 2018. Low Hb and platelets, weekly transfusions. No genetic mutations. Developed into AML with FLT3 mutation while waiting for a SCT. Allogenic SCT - MUD in Feb 2019. Relapsed June 2019. Azacitidine, Venetoclax and DLI.