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Old Sun Jun 23, 2019, 06:42 AM
David T David T is offline
Join Date: Oct 2018
Location: London, England
Posts: 16
Update from David

Unfortunately my stem cell transplant has started to fail and the leukaemia has returned already.

I have been back in hospital for a week and half now. They have started me on azacytidine and venetoclax to try to buy some time, but the prognosis is not good.

I don't feel unwell, but they won't let me go home because I am running a constant temperature.

So my world has been turned upside down again. The pure joy of a seemingly successful transplant has suddenly changed to despair. What a cruel disease.
David, Age 60, diagnosed with MDS August 2018. Low Hb and platelets, weekly transfusions. No genetic mutations. Developed into AML with FLT3 mutation while waiting for a SCT. Allogenic SCT - MUD in Feb 2019. Relapsed June 2019. Azacitidine, Venetoclax and DLI.
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