Hi cheri,
You know as far as I understand Vidaza is supposed to be the first line drug for MDS patients. There is no need for a BMB now. Vidaza has to work on dividing cells - that's why the drug works so slowly.
Your WBCs are very low
. When they are so low all kinds of bacteria, virus and fungi that we all have in our bodies can cause infections. I can't really understand why the doctors in the US don't treat their patients with Neupogen or a similar drug that increases the WBCs. In Sweden our doctors think it is OK to give Neupogen (I have had the drug more than 3 years now) and research has not showed increased risk for AML.
Be careful and avoid everything that can cause infections. Control your temperature morning and evening and if it is high don't take any drugs but go to the hospital for examination.
Many patients that don't respond when they get Vidaza try Dacogen and get a good response.
Kind regards
Birgitta-A