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The sores look like blood under the skin.
She was admitted back to the hospital today. She has pain in her upper back and neck. Also now her feet have swelled (edema?) and her ankles hurt (achilles tendon??) on both legs. She can barely walk.
She asked to be admitted by to the hospital and then she will probably go to a nursing home because my dad cannot care for her. They don't want help in the home. They have a small 2 bedroom apartment and they don't think that is the best way to go.
I am sick with worry and I don't know who to turn to. It seems no one at the hospital where she goes is a specialist in MDS. They seem confused.
On the bright side, she has no fever or dizziness. Also, her appetite is good.
Any insights that anyone can give is so helpful.
It is very lonely out here.
Yaka
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