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Old Mon Feb 18, 2013, 08:14 PM
MDSPerth MDSPerth is offline
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Join Date: Sep 2012
Location: Perth, Western Australia
Posts: 74
I am no expert but can only give this comment. Paul is on EPO to help elevate his red blood cells. This has worked well raising them from 90 to at one stage 153. However, his doc has adjust the frequency of the dosage because they don't like them to sit above 120 (despite the fact that that is lower than the 'normal' range) because of the increased risk of clotting. Its hard to get your head around when platelets can be at 24
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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