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Wow, Deborah52, what a story! I am so sorry you had to endure such a nightmare, and the good news, I suppose, is that it's over and won't happen to you again. You surely would've thought that someone out of that large group would've picked it up. You are certainly a prime example that each patient has to be their own advocate, or at least a trusted family member.
I myself might not be here b/c of some (stupid) cardiologists' actions and orders that I stopped, but I'm a retired RN. My financial guy diagnosed his wife's very serious prolonged illness himself, with extensive research online, and that was also due to a drug interaction, and she had been scheduled to have a lung biopsy, not a minor thing.
So glad you persevered and survived!
Mags
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Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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