Hi, newbie here. I assume Myelofibrosis is part of the MDS family. I'm confused as when I read some of the medications some of you are taking don't seem ok for people with Myelofibrosis. I guess thats where I'm confused.
I'm still researching all of this as my 78 yr old mother was diagnosed a month ago. She is taking Hydrea. This has helped platelets to finally decrease but now her RBC is 8.5. I've been reading a lot on here and it has actually helped us feel a little more hope and not such a quick death sentence.
Thanks!!
Tammi