|
Dear Julie,
I can't even imagine your concern and heartbreak.
If you have read any of my previous posts I am a great advocate of The National Institutes of Health in Bethesda, Md. They have a huge, beautiful stone building just for the kids who are patients and their familes right on the NIH campus. They are on the cutting edge of blood diseases. The man who is considered the #1 hematologist in the world - Dr. Neal Young - is over the hematology dept. although I don't know if his specific dept. handles children with MDS - but I consider them the best in the world. My husband is an MDS patient of theirs and has been since 4/09. I truly believe they saved his ife.
Also, any care you receive there is free as they do clinical trials for the FDA. And you will never find more accessible doctors anywhere.
My best wishes and prayers for your baby and family.
God Bless,
Sally
Last edited by Sally C : Tue Feb 28, 2012 at 12:26 PM.
|