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Old Fri Oct 10, 2014, 03:35 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by GoodDay5150 View Post
I am not a dr but I am very familiar w/ blood tests and what not bcse I have had PNH, a stem cell trans, follow ups, A LOT of tests, post and pre, etc etc for over 3 yrs. Yes she obv has a confirmed blood disorder. In my opinion, your 1st concern shd be getting her blood counts normal. You don't want a dodgy immune system in a country like India. White cells and red cells are 1/2 of what they shld be. Hemo is not that bad but shld also be higher. MCH and MCV are also both high, which I assume are related to the disease, cell brk down, etc. I'm guessing that the health care system in India is not the same as here in the US where mid class, and or high income ppl on private insurance or gov subsidized ppl get basically the same care. So whether through supplements or meds to encourage cell growth, or another doctor who offers more treatment options would be the 1st order of business.
I did not notice a white cell deficit. That would indicate that she should be checked for LGL leukemia. That is not a true leukemia, but can me mild and chronic. It often combines with PRCA.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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