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Old Sat Feb 3, 2018, 07:02 PM
rar rar is offline
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Join Date: Mar 2014
Location: colorado
Posts: 215
Meri,

I would be careful in tapering your prednisone so quickly. The recommendations I see say to reduce 10% to 20% per step, with steps are 1 to 2 weeks depending on how long you were on it. If you cut the immuno suppressant too quickly you run the risk of GVHD. A gradual taper allows the adrenal to ramp up the cortisol as prednisone is cut. Otherwise you run the risk of adrenal insufficiency which is no fun. My pred was cut too quickly and I had both problems. Pred also comes in 2.5 and 1 mg tablets to allow for the gradual taper.

Don't be too impatient. Do it right the first time. I still suffer some from cGVHD including Dry eyes, vision changes, Dry mouth, pain or sensitivity to certain foods, Shortness of breath, Difficulty swallowing, pain with swallowing, weight loss, Fatigue, muscle weakness, pain, of the nerves and muscles, and slight rash on my chest.

I am glad the rash pictures helped.

Ray
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