Wed Aug 12, 2015, 04:04 PM
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Member
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
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Quote:
Originally Posted by Laurie S.
I'm returning to this forum, re-registered...we're going to Cleveland next week to consult with Dr. Maciejewski...my husband has been stable on cyclosporine for PRCA, so we've had 10 months of transfusion-free living...very nice respite...his doctor now has to treat his CLL (leukemia) again, so it's not clear if he can stay on the cyclosporine, or if a return to weekly transfusions is imminent...scary, but we're doing everything we can do...
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Best of luck. Let us know what he says.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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