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Old Mon Jan 16, 2017, 10:14 AM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Thank you Hopeful,

I haven't checked this board lately.
You gave Lynne Very good advice. There is a very active Facebook group for Pure Red Cell Aplasia. I think Lynne has found us and we have been able to provide some help.

PS: That video by Dr. Maciejewski is very good, and I encourage everyone on ALL of the Marrowforum boards to attend the www.aamds.org conferences.
There are six scheduled this year.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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