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Old Mon Apr 11, 2011, 01:33 AM
Lisa V Lisa V is offline
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Join Date: Aug 2006
Location: Waimanalo, Hawaii
Posts: 401
I got a Medic Alert bracelet for Ken when he was first diagnosed. They may not have AA listed as a standard category, but they will work with you to customize it to your needs. Since space on the medallion is limited, we finally decided on: "Aplastic Anemia, low platelets, immune suppressed". Paramedics would have to call Medic Alert for more information, including his doctor's phone number, but that seemed like the most important bits of info to know.

Of course you have to pay them an annual fee to keep all your info on record, and send them updates as needed. Ken no longer wears the bracelet since his Plts are near normal now, so we've let the membership lapse.
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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