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Elrojo
Welcome to our world; there are many of us here to support you as you go through this roller coaster of a ride called Bone marrow failure. Sometimes it takes a long time for the drs. to figure out what you may have. Then the diagnosis may change...... Make sure you have a decent local hematologist for routhine blood work, etc., but in the meantime, you should try to locate one that specializes in bone marrow failures. "General" hematologists see so many different patients.
Do some research, contact aa/mds foundation, (they will send you lots of literature), and ask any questions that you have. You have to be active in your treatment plan, so you need to learn as much as you can. Get 2nd opinions once they come up with a diagnosis.
So many people here have been through different things, so there is a wealth of information to be had.
Good luck and I hope you end up with fairly good news.
Lisa
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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