Marlene, Thank you. It is a constant battle as you know all to well. Hopeful a battle to keep on winning. Wishing you and your husband all the best.
Meri, Thank you for the uplifting words. You have been so kind. Thanks for the prayers! Need them again!
Curious about cord blood transplant and why did they mention to do that rather than DLI or second transplant?
As it stands he will have Venetoclax & Aczididine combo. Then possibly a DLI. Possibly a second transplant with a different donor. His problem results in recurring mutations same and new. PETscan showing lesions in various locations inside the body.
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