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Old Fri Apr 23, 2010, 10:24 PM
MichelleD MichelleD is offline
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Join Date: Oct 2009
Location: McKinney, TX
Posts: 10
Linda,
I got diagnosed in the hospital with SAA. My hemoglobin was under 7, platelets 10,000 and whites around 500. We didn't know I was sick and lost so much blood in 36 hrs due to my monthly cycle. I responded great to the ATG the first time. But I went out of remission about 6 months after they took me off the cyclosporin. The second go around took about 16 months to fully respond but it worked. Then last May we learned it had gone into the PNH and MDS. I do have a file at the NIH that they are keeping on me. They just don't want me to come out for a visit until my counts take that downward turn again. I have another BMB this week at UT Southwestern to see how I stand. I'm hoping that my blast hasn't grown and no new chromosome mutations. We'll see.

Michelle
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Michelle, 41, SAA, treated with ATG Dec 2003 & May 2006. dx PHN & MDS, May 2009.
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