[Relentless Against SAA]

I have actually talked with NIH a couple of times. We are currently gathering medical records for them because they would like to review our case. This is my dilemma: Our current physician is an extremely experienced physician with SAA. He is wanting to start Promacta without a clinical trail. I do not know what to think about this. I am concerned about using Promacta outside of a clinical trial. I am very worried about bone marrow complications and new clone developments. At the same time, we are seeing one of the top docs in the nation, I do trust him and we are fortunate to have him on our side . I wonder if our current expert would promise to do frequent bone marrow bx if we wouldn't be better off staying with him. I am not sure what to think but we need to make a decision soon. Anyone with advice?