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Sorry your having a rough time of it. How many rounds/cycles of vidaza?.
I just completed my first round of vidaza yesterday. Its my understanding that both vidaza & dacogen initially will bring your counts down. I forget how long it takes to do that. My hematologist mentioned he may have to give me a shot of Neupogen before I even started the treatment, and I was told by 2 hematologists I might feel tired as such. Eventually the idea is to get the counts up and reduce the number of blasts. BTW, I lived in Chester for 15 years just up the road from you, then moved to rock county. Why the switch from vidaza to dacogen? if the vidaza was working(reducing the number of blasts) why is the switch to dacogen? If you are having an SCT the vidaza/dacogen treatment is meant to condition you for the SCT. The survival curves seem to favor those pretreated with a demethylizer before SCT(that's what I was told). I use a local heme/onc that sends me to another heme/onc at cornell/weill/Columbia Presbyterian, then they collaborate... that's where I get this info. Hope your feeling better and your counts return to where they should be. BTW - The onc @ Columbia told me they administer it subcutaneously were as my local onc suggested the IV was a lot more tolerable for the reason you mentioned and so I skipped the injections and went for IV.
All the best,
Steve
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