Renee,
I'm the only active PRCA poster on this board. It sounds like you at least are seeing the better doctors. I'm going to write you a note off line. Usually, they have never even seen a case or very few cases.
The people at
http://www.aamds.org/ can be of great help. Talk to Leigh Clark there. I went three years of total chaos, but not as bad as yours, before I found them. They directed me to Dr. Maciejewski at Cleveland Clinic. He has the most PRCA patients (23 at last count). Otherwise, you just won't find any. I am greatly improved, but there are no quick fixes.
I'm a peer support person for PRCA for the AAMDS people. There is one other lady doing that. There are a group of four of us on facebook. We all have different stories.