|
Diagnosis/Treatment Update
So since my last post we have heard back from the doctor at Mayo with the results of the recent BMB and all the blood work/CT scat etc.
Brian's bone marrow results show no RBC production, confirms it is PRCA, flow cymetry normal, no genetic anomoly, no CLL in the bone marrow.
Brian does have 2 lymph nodes that are enlarged, the doctor is concerned that there is CLL in the lymph nodes, although unable to biopsy due to their location.
He is recommending that Brian take cytoxan (daily), with rituxan and decadron every 3 weeks for 18 weeks.
I have a lot of questions for the doctor, so am making a list for our next call with the doctor, but also looking at a 2nd opinion up at Cleveland with Dr. M that triumphe64 is seeing. If CLL is the underlying cause, want to treat that, but w/out it being found in the bone marrow and still in bone marrow failure, concerned as to what is going on and the longer treatment time recommended.
Anyone else on this type of combo? Brian is starting his wheatgrass as well to help with the iron levels, he is currently on Exjade, so hoping this will help as well!
__________________
Renee, wife of Brian age 44; dx Prca 2009 & possibly CLL, w/iron overload; treated with prednisone, cyclosporine, rituxan/cytoxan, Exjade & Desferal; spleen removed ‘10; currently transfusion dependant w/iron overload; on Exjade & pending next step in treatment. Patient at Mayo Clinic, Jax, FL.
|