Lianne,
All I can say is be proactive, aggressive. Don't let the doctors think you don't know anything about AA. You are off to a great start, asking questions, coming to the forum and posting. Not all physicians know how to treat AA. For us, we found out to late for my dad, that not all doctors treat AA aggressively forever. The doctors treating my Dad gave up on him (without permission) less than a month after he was diagnosed.
Lianne, ask for copies of labs, demand that your mom be treated with the medications you learn about her on the forum and through the AA&MDS Organization. We tried, with my Dad but the doctors were not very receptive. I live in Florida, I was the one doing all the research, my Dad lived in Alabama 8 hours a way, and because I wasn't at the hospital everyday during his admittances, I wasn't able to make sure "things" happened. That is one of my biggest regrets!
I know my Dad is in a better place now. He is healed and happy but I want to make sure that know other loved one of a paitent of AA goes through what I went through....what I am still going through!
It's great that your mom's doctor is open to communicating with you. That's a wonderful start. My Dad's doctors barely talked to my mom and never ever called her unless he was critical. Keep the communication going, email, phone, ask quesitons, be a pest. I found in dealing with my daughter's liver disease the persistence (being a pest) certainly pays off in the long run. Do not be afraid to question the doctors treatment of your Mom. Don't be afraid to get angry, make things happen! They will listen...
I will keep you and especially your mom in my prayers.
God Bless,
Laurie
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