[Connie]

I do really well now, thank you. I still take Aranesp, but am soon to try once again to get off of it. I do still need to take naps and get tired. Also, my memory seems to be pretty shot. But I am doing so much better than I used to do.
Funny, I used to think I wasn't that sick either, and soon found out that I was. I think us women try to handle almost anything and convince ourselves we are ok. So be sure to listen to your Dr.s, but do what you feel you can.
Please let us know what you find out at NIH. Sounds like maybe you are going to consider a clinical trial?
Connie