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Old Wed Dec 14, 2011, 12:47 AM
KimO KimO is offline
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Join Date: May 2008
Location: Chattaroy, WA
Posts: 48
Hopeful, your schedule sounds very similar to Shauna's. She gets CBCs monthly and sees the hematologist every 3rd draw and they review to confirm whether to go down another 25 mg. This last time her WBC had dropped so they waited 2 weeks and retested to confirm it would rebound before doing the scheduled taper. She's down from 300 mg/day to 250 after 6 months. If the schedule holds the taper will take two years.

Jody, for Shauna her ratio of lymphocytes to neutrophils was far higher when she was first diagnosed and again at relapse. Normally her ratio is along the lines of 55% neutrophils and 45% lymphocytes but when she relapsed it got as bad as 80% lymphocytes. That isn't necessarily the case for others.
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Kim, mom to Shauna, SAA 10/2007 at age 19, ATG/Cyclosporine 12/2007, end cyclo 4/2009, relapse 8/2010, and 9/2012, counts recovered on cyclo alone 300 mg/day x 2.
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