[us6inks]

Thanks for the words of support Denny. I wish we were as fortunate to have a sibling match. Since diagnosis, we have discovered that none of our other 3 children are a match for Lillie. We continue now with dr visits 2-3 x per week for transfusions (mainly platelets). We're waiting on one genetics test to come back to rule out a rare "inherited" form of AA. Assuming results are negative for inherited AA, we'll move to immunosuppressive therapy. I've seen a lot of information about other kids that are going through or have completed IST in the past few years, but I wish there were more folks out there that have 15-20 years post IST experience to share.

The obvious concern when you don't have the sibling BMT match is the possiblity that, even with IST remission, there is always the chance of relapse. I guess we'll cross that bridge if & when we get there. The positive note is that there is continually improved success with pediatric MUD BMTs.

Thanks Again Denny,

Robbie Inks