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Old Thu Apr 3, 2014, 03:15 PM
Wife of Diver Down Wife of Diver Down is offline
Join Date: Mar 2014
Location: Miami,FL
Posts: 13
How do I find out clinical trials for persistent MDS post MUD?

My husband underwent MUD on 2/21 for high risk MDS and BMbx shows persistent disease with 10 % blasts and chimerism 85% donor; He has acute GVHD of the skin involving 80% of his body; For now docs here recommend photophoresis and want to taper him off the steroids as quickly as able to try to maximize possible GVL effect;

How can I find out about other treatment options/clinical trials? Does anyone know of any for persistent disease post MUD or recommend a specific expert clinician for consultation?

Wife of diver down - still fighting!!
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