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Old Sat Oct 12, 2019, 09:20 AM
Marlene Marlene is offline
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,351
I'm so sorry you are having to deal with this. Not too many doctors have experience treating SAA patients and even less experience with someone who is pregnant. If they have not already done so, I would suggest they consult with National Institute of Health, DR. Young or Dr. Brodsky at Johns Hopkins. They are very experienced with SAA and I'm sure have seen SAA during pregnancy. You can also search for pregnancy on this site since there were some older posts on this. Most having to do with getting pregnant after treatment though.

It's important to have a doctor experienced with these diseases.

Wishing you the best.
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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