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Mer,
Itching is a known side effect of Retacrit for some people. Has your physician considered other epoetin drugs that might not have the same side effect?
I think it's prudent to worry about low neutrophils. Do you know your Absolute Neutrophil Count (ANC)? That's the real measure of risk.
You might want to mark your calendar for November 7, when the MDS Foundation will be having a Patient Forum in Tampa. You could meet and talk to expert MDS doctors in person there.
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Founder of Marrowforums and caregiver for my wife
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