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Hi Helen: I think we have talked before. First Birgitta-A always seems to be well informed. When dx in May 07 my plt were 140 so I can't really relate to your problem in regards to extremely low plt. What I can tell you is that I go to Hillman Cancer Center in Pittsburgh and they are quite good. From my experience I would go to a Cancer Center as opposed to a satellite location or a hospital that doesn't specialize in MDS. I believe there is a large difference in the quality of care with the doctors, the nurses and the instant lab results. My labs have been great since Nov. 07 with complete remission in Feb. 09. I continue on Dacogen every eight wks 5 consecutive days. If you feel it's possible to hold out for the second opinion I would try to do so.
Good luck and my prayer will be with both of you.
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Mike Conlon
Go Steelers(Seven is Heaven)
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