I called my doctor's office in Dallas. They did not know of any, but did a Google search and found a "forum" (this one?).
You might call Leigh Clark at the AA & MDS Foundation. She was helpful in finding me some people with my condition to talk to.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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