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Old Fri Apr 25, 2008, 02:37 PM
Dick S Dick S is offline
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Join Date: Jan 2008
Location: Florida
Posts: 189
I have searched and asked and have never found any local support groups. We are too small in number and we are scattered far and wide across the states and the world.
My hope is one day we will get the attention and respect this disease deserves, along with that will come funding, research and eventual medicines and possible cures. We can only hope and work at it.

The only helpful place I have found is this forum and I thank God for that, I finally found out I am not alone and others know what I am going through.

I finally get my BMB next Tuesday and I can finally put a name on my disease and possible treatment, instead of just Bone Marrow Failure or myelodyspasia. Two years of suffering and just hearing "it's not that bad YET" is really getting to me. Sorry for the rant.
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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