Owing to the number of PRBC transfusions, for three years I've been taking Exjade to keep serum ferritin under control. For low-risk MDS it's always the reality that YMMV. I get some of the usual side effects from Exjade, but improvement in Hgb levels is certainly NOT one of them!
I would say that such "studies" have indirect support from Novartis.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%
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47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).