Quote:
Originally Posted by jennie
Warren-
I have had two transfusions, probably having another this week. I have been dropping again 
How about you? You and I started this journey around the same time, sounds like. I am curious that you got diagnosed so definitely. Do you know what they saw in your marrow that gave you that definite a diagnosis? My doctors don't seem sure enough to tell me anything more than bone marrow failure. I don't really understand why they aren't sure...
Jennie |
Hi Jennie,
I'm curious as to what the results of your BMB were? did they tell you anything? what is your cellularity %, my son has a hypoplastic bone marrow, and really, that's all I know that this stage, it's frightening for sure, I wish I had some answers. He's having his second BMB in Jan, first one showed no abnormalities just decreased amount of cells. His diff counts have been holding over a year now, in the normal range of low. Do you know what your diff counts are? Anyway, I can relate to your frustration, it's so hard not to have the "answer". What makes me very worried is my mom had MDS RAEB T, and I can't help but worry that there is some genetic connection. Hang in there and I hope we both get some answers soon.