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Old Mon Nov 23, 2009, 11:54 PM
Jen B Jen B is offline
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Join Date: Jun 2009
Location: Glendale California
Posts: 42
Thanks for your input. I think they may be a bit more lax here. No one wears gowns as we are not in contact isolation, but all wash hands with soap/water or antibacterial foam and put on gloves and masks. We are in a positive pressure, hepafiltered room.

Ethan had a fever last night that after taking cultures and administering Tylenol, was gone in the morning. He has had a bit of a cough and stuffy nose, chills, and didn't eat today as well as he had been. But all in all, he seems to be holding up.

He has been on every antibiotic, antifungal and antiviral since the get go. I forgot to mention that we found out our donor was from Germany. The day we were to get our transplant, the Dr. let us know that he would rather wait until the next day since the cells came in so late in the evening. Our transplant day was moved one day out. When they put the cells in the centrifuge the next day to reduce them, the bags tore at the seams. This is not something that has ever happened before, they say. As you can imagine, we were pretty upset. The inside of the bags were sterile. Those sterile bags were put into other sterile bags, but when the inner bag broke, the cells were in contact with the outer part of the inner bag - which wasn't sterile. So they have been watching a culture of the cells since day 0, and have had Ethan on all kinds of preventative meds.

So far so good - the cultures are all negative. Day +13 almost over.
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Mother of Ethan, diagnosed with SAA at age 3-1/2 Dec. 2008; Treated with ATG(h) Dec 2008 and ongoing Cyclosporine. MUD BMT 11/10/2009, 10/10 match
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