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Old Sun May 13, 2012, 04:23 PM
Chris H Chris H is offline
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Join Date: Feb 2012
Location: Winnipeg, MB, Canada
Posts: 16
Day +48

it's hard to believe we have been out of the hospital for a month now.

Kira is doing exceptionally well and I'm almost afraid to talk about it and jinx her in the process... ha ha.

We go in to clinic for blood work every tuesday and they are keeping an eye on her EBV levels as they were low but climbing a bit. Nothing to worry about but they are going to continue to watch.

She wasn't declared engrafted until day +32 so the doctor is a little curious about what took so long but he's happy with her progress so all is good.

She has had no fevers, no rashs, no major GVHD so far... She is one very lucky girl! We can't believe it has been so smooth for her but are very happy too.

She is nauseous every morning and has the odd "tummy" attack every couple of days but I'm not sure if it's the meds or a bit of GVHD.

Day +43 we celebrated her first two "low normal" counts in her platelets and neutrophils, counts that day were;
WBC 4.35
RBC 3.81
Hgb 113
Platelets 161
Neutrophils 1.94

So my wish for two healthy kids home for Mother's day came true.
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Chris, Kira's Mom (she's 11); diagnosed SAA Jan 2012 after 6 months of tests; scheduled for BMT March 26, 2012
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