Hello Alice,
So sorry to hear your news.
My husband recently passed away MDS to AML, however he continued longer than the prognosis.
The only consolation I can give you and certainly from my part on hindsight is to pursue any clinical trials or drugs, push your consultants for any possibilities outside of the "box".
I wish you well in your endeavours and my best wishes.
Barbara
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Barbara wife of Patrick age 60, Diagnosed SAA Jan 2016, 2 Treatments of ATG partial response, continuing with Cyclosporine.
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