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Thank you very much. I've seen a hematologist that has treated this before, and had a consult at the University of Florida Shands Hospital's Bone Marrow Transplant Teams.
I also saw a hematologist that hadn't treated AA before and caused me to waste 6 months.
My number had been slowly declining over the last 2-3 years but the decline rapidly accelerated.
I'm meeting with Moffitt's Bone Marrow Transplant Team soon. The problem is I'm 40. Older than pediatric and young adults but not elderly. I'm probably going to do IST as my first round treatment. I also have to see how good a match my brother is and have him tested (HLA testing I believe).
If I could stay stable for 2.5 more years
I would be retired with health insurance. I'm not sure that would happen.
Hard to decide if I go right to BMT if I have a good match and hope it's curative instead of fatal. Or do I try IST, my concern being that that's more time that I'm weak and then add a BMT on top of that.
Sorry for the ramble. It's a lot to get a grasp on.
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