[meagansmom]

Mom went in for surgery the Thursday before Thanksgiving and they found a hemoglobin of 5.4. Surgery was cancelled and she was admitted. Received 3 units of blood and a BMB. The follow up to the doctor he said she had high risk MDS but all of the results weren’t back yet. Set to start chemo the next week and then more of the results were back and the news was even worse. He said it was increased to very high risk MDS. He said life expectancy is 9 months but he was shooting for 18 months with chemo. I am a nurse and I knew cancer was a possibility but they only told us they expected it to be her rheumatoid arthritis attacking her cells or one of her rheumatoid arthritis med causing the issue.

Did he mean her life expectancy is 9 months and he was just hoping for more time? She took it as 9 months without chemo, 18 months with it? I am not sure that is what he meant???? (Should I ask him?) I don’t really know what to expect.

Her hemoglobin has already dropped to 7.0 and had to have 2 units this past week.

How often do most have to have transfusions?

Does the Vidaza usually take while to begin to help and decrease the need for transfusions? How long does that take?

Caregivers how do you manage to keep a job, take them to chemo,take them once a week for labs, transfusions, plus all of the other things required, get them groceries, clean etc?

My mother is blind and I am her primary caregiver even before this happened. I am worn out. The plan is for me to move in with her and my daughter move into my house. I am overwhelmed. The packing and moving and rearranging 3 houses down to 2 a lot to figure out and choreograph!

Thanks any information or advice is appreciated.