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Hi again Sylvia. I'm glad that Henry is so positive... I could probably learn a thing or two from him.
So yeah, I was diagnosed a few months ago with intermediate MDS. But I've been having platelet problems for over a year now. I had to have surgery last year and needed platelet transfusion to get through. I knew something was up... but it took a while before they would do a biopsy. But suddenly I was dealing with platelet counts of 20 and so then biospy test showed I have a few cytogenic problems which confirm MDS.
If u have any other questions... maybe I can help. All the best with your appointment. Jules
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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