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Old Fri Dec 21, 2012, 03:10 PM
amberb amberb is offline
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Join Date: Aug 2011
Location: Jacksonville Beach, FL
Posts: 21
When to taper Cyclosporine?

This is just a general question about when to start tapering Cyclo. Does anyone know the method or reasoning behind when the tapering starts? Is it based on how good the blood counts are or how consistent they are? Does it have anything to do with how long you've been on it?
I've been on Cyclosporine for 1 1/2 years with the dose usually around 150mg twice daily. My blood counts have been pretty consistent in recent months, not perfect levels, but maintaining. I'm wondering if there's a point in time in which the Dr will say, ok, this is as good as you are going to get, let's taper. Or if they are going to keep at it to get to perfection. My Dr has told me he will never fully take me off of Cyclo, but tapering down is the accepted standard of treatment.
Any input from articles or personal experiences would be great!
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Amber, age 24, diagnosed w/ SAA and treated w/ horse ATG 7/11, rabbit ATG 1/12, on cyclosporine. Started Desferal infusion for iron overload 7/12.
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