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Old Fri Mar 22, 2013, 08:35 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi, I was told "possible" MDS for 6 years. Then BMB said MDS RARS, then next one said MDS RCMD, then next one said MDS RAEB. Then I was found to be copper deficient. Having copper replacement therapy. BMB still states MDS RCMD but peripheral counts good and no longer requiring transfusions.

It's almost certain I do not have actual MDS but more like a pseudo MDS that is treatable.

Hope this helps, sometimes chasing a diagnosis is very frustrating.

Regards

Chirley
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