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Old Sat Oct 5, 2013, 06:41 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Thank yall all for the responses! He also enjoyed the encouragement
Honey he has been keeping a written journal but I'm talking to him about doing a carringbridge one.
Katgio I'm sorry your husband is battling an infection. How is he now?
Wiz thank you we will have you in ours. I will also post his schedule bc I was wrong earlier when I said his was simular to yours. Are you getting anxious? We had trouble sleeping the week or two before but are doing well now we are finally here.
Susan I hope you get word back soon on the potential donor they found.
Thank you Cheryl and Neil!
Deb how are you and your husband?
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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