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To ESeda
Hello Eli & Nellie,
This is my first reply on this forum, but wanted to share my experience with Vidaza. Vidaza controlled my MDS for 12 months. I did not need transfusions during this time, and was doing well. So, yes, I feel Vidaza is a good treatment if it works for you. Recently, however, my red count dropped over 2 weeks at which time I needed transfusion. My doctor at Vanderbilt in Nashville, says I need to go ahead with a Bone Marrow Transplant. This would be reduced intensity BMT. I have agreed reluctently, because I'm simply scared. But, according to my doctor, I have a 50/50 change of a cure and could prolong my life 20 plus years. So, what do you do????? The other thing, is my age I am 56. Transplants are not offered to 65 and up at Vanderbilt as of now is my understanding.
Also, Ruth, if you read this, would you please write me...I could use some encourgement, I am a bit scared right now of the BMT but feel I have no other choice but to go for it. Thanks,
Erma
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